The Hovannesian Feeding Foundation was
started by the Hovannesian family after
welcoming into their family their daughter,
Vivian, born with Kabuki Syndrome. From
birth Vivian had feeding issues caused by low
tone, a high arched vaulted palate, bifid uvula,
and an inconsistent suck pattern. Vivian spent
5 weeks in the NICU when it was decided to
surgically implant a feeding tube in her
stomach. Vivian was taken home a few days
later and a long journey began. The journey
has included many specialists throughout the
country and numerous feeding apparatuses and
supplies. Through hard work and therapy
Vivian has overcome much of her feeding
aversion, gagging, and other issues associated
with her problem. Vivian's feeding will always
be an issue. It will take years before our
family stops counting every calorie and
weighing her daily. But, we are in a much
better place and are extremely positive about
what the future has in store for Vivian.
About Us
The Hovannesian Feeding Foundation accepts private and corporate donations in an effort to raise money for feeding treatments and supplies. The Feeding Foundation has been involved in numerous fundraisers, mostly home grown, that will continue annually.
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We also accept donations of feeding supplies. In many cases families have excess items. We would like to collect these items to redistribute to families who are forced to pay out of their pocket despite having insurance. Other items such as new bottles, bibs, spoons, and other feeding related items are welcomed. After completion of a feeding clinic or treatment we would like to send families home with a CareBasket filled with bowls, spoons, bibs, etc. to help them start the wonderful experience of oral feeding. Please email or call us if you have any new/unused items to donate. The foundation will pay all shipping costs.
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